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  1. andym

    Close to more treatment

    I'm sorry that you have to face treatment again. I've had two retroperitoneal nodes biopsied with CT guided core needles. When I heard the plan of how they were going to get into the area the first time, it made me a bit nervous. But both times it was really easy and a quick recovery. Will...
  2. andym

    Update MCL

    I'm sorry the Revlimid hasn't been working for you. Yes, low dose radiation can do a lot of good for NHL and I hope that is the case for you. When i had it to my axillary the side effects were not noticeable but it did work. I'm not familiar with Zanubrutinib but that's a good thing. We need...
  3. andym

    Follicular lymphona grade 2 Stage 4

    Fantastic news!! I'm so glad that the Revlimid has worked so well. Enjoy that great scan!
  4. andym

    I’m Seven!

    Have you gone through your immunizations? If so, you could get a test for MMR antibodies or shingles antibodies and see if you developed antibodies in response to the vaccines. I developed antibodies in response to 2 of the 3 in MMR. So it can be a partial thing. My IgG has gone up recently and...
  5. andym

    DLBCL long term remission

    When I was first diagnosed, one of my colleagues told me he was 15 years out from DLBCL. That was 16 years ago and he is still fine. I also have a friend and another colleague who were both diagnosed with DLBCL about a year after me. They are both NED for 15 years now. And we’ve had many forum...
  6. andym

    Clinical impact of COVID-19 on patients with cancer

    That's a very interesting study. I've just scanned it but see some lessons. Hematological cancer patients did worse than solid tumor cancer patients. So, that's a point in favor of us being extra careful. Risk is lower if you are in remission or NED and also if you are in better health...
  7. andym

    I’m Seven!

    I think the problem is that recovered BMT patients covers a really wide range of people from people still on immune suppression for GVHD to people who are basically normal. I haven't seen any stats. My most recent IgG last month was in the normal range and so I think my transplant doctor...
  8. andym

    Bump

    Building the biking into your gym days is great. I definitely agree that the best is a setup with multiple choices: free weights, cable machines, and trx. It is currently impossible to buy dumbbells but we have a few. I also bought some elastic cables to use instead of a cable machine with...
  9. andym

    Bump

    Much of my resistance training at home is done with a TRX which uses body weight. It is much cheaper and more compact than a cable machine, although those also have their advantages. www.trxtraining.com There is also advice online about making your own from some webbing straps and pvc pipe at...
  10. andym

    Update and question about relapse...

    And you are right that an SUV of 8 is on the low for aggressive lymphomas. I'm basing that on a study I remember about the SUV values for follicular and transformations to DLBCL. You're not being naive at all. There are just a lot of us that don't manage to stay calm!
  11. andym

    Been awhile - long post

    Thank you for the update about what has been a very difficult time. Yes, there are a lot of hurdles but one day at time can get us through. And CAR-T has done such great things for so many people who were having trouble finding a way back to remission and health. I truly hope he is yet...
  12. andym

    Update and question about relapse...

    It is great that you are taking this in stride. For the needle biopsy, will it be a core needle biopsy with the samples being checked by a pathologist during the procedure? That approach gets very good results and is way better than fine needle aspirations. I've had a few of the core needle...
  13. andym

    3 years to the month, symptoms are back

    I agree with po18guy that aches and pains near former tumor sites could be due to scar tissue. The good thing is that you got out on your bike. You can always check with your doctor but I bet that the combination of new exercise, old damage, and stress can explain a lot. Your Feb-March...
  14. andym

    Follow-up imaging after treatment

    Welcome to the forum, Mary. That's really difficult to face financial concerns when trying to decide what is best for your health. po18guy has some good suggestions. MRI's done correctly for lymphoma can show a lot and I know patients who use them instead of CT scans to follow lymphoma. BTW...
  15. andym

    Bump

    Overall, it sounds like you are doing well with some of the usual stuff we go through while recovering from treatment. It's not easy but one step at a time and there seems to be progress. I am very impressed that your hospital provides a gym for cancer patients. That is so great, especially...
  16. andym

    New to forum

    That is great news!! Enjoy your time off.
  17. andym

    Update and question about relapse...

    Hope you get good news from the scan. Sent from my iPad using Tapatalk
  18. andym

    Update on Scott

    Here's two stories about how tired I was. During the early days I was on a phone call with a few colleagues and one of them said how energetic I sounded. I told them that was good but I had done another phone call earlier in the day and then took a two hour nap. And I was going to need...
  19. andym

    Mild night sweats on treatment

    I have a different form of lymphoma and had different chemos, but I definitely had night sweats during chemo that were just related to the effects of chemo on my body and not anything about the lymphoma which was being treated successfully. I never got a good description of why they were...
  20. andym

    Stem cell collection not 100% successful

    I was also an allo transplant and so didn’t have to face this step. But I get that each barrier we hit is so tough to face. I hope some of our auto transplant folks stop by. I do remember some people having to do quite a few days of collecting to get enough cells but I don’t remember the...
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