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  #1  
Old 05-24-2008, 05:17 AM
pine soul's Avatar
pine soul pine soul is offline
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Join Date: Sep 2006
Posts: 4,733
Default The Welcom Wagon - New

"We would like to keep this thread with NO REPLIES in order to keep it short and manageable -- and to aid and expedite the understanding of new arrivals.

In order to do that, we urge you to:

1) place comments, thank yous, etc. in another thread;

2) use the "How to Bump a Thread" method at the bottom to send this thread back to the top of the currently 'active' threads.

Thanks."




From Skylin



Thot we wd pt tgethr a reel welcom. so heer it is.
welcom to owr 'famly'
glad ya fownd us, bt sory ya *had* to.

heer is a list of good 'bginnr' threds to help ya get to no us, and get starrtd heer. pleez feel free to jump rite in.


NHL Our Stories


CHOP-R Tips


Whoooooo are you? Our Occupations


What's In A Name


SCT Tips


How To Use The Board Tips


Shingles Warning


Copay Assistance


Financial Help Re Treatment


LLS Copay Assistance

oh, ya GOTA meet MARK thers som fun in ths guy ttht yuo js gota *tast*


Mark's For New Arrival Tips


Depression Self Assessment Tool


Another Depression Self Assessment Tool


Two Good Books about Depression


The Shiznit


Great Ideas For Gifts


whew! ok!
anybdy els hav som cool Welcom Wagon threds? or advis? or 'stuf'?





do yuor best to RELAX....trutth trusst me, its al yuo cn do.

HEERS TO HOPE!

sara

www.lymphomation.org



add to ths, if yuo can find good posts or can thnk of tthngs tht can HELP TH NEWBYS OWT!!!!!


heer is a GRATE THNG........at the top of the screen yuo wil see "my home', "Main Index", Search", Active Topics", Who's Online, FAQ, User List, and th big one CALENDAR....ths is th one i want to talk abowt

CALENDAR and how to use it
to add yuor own appts ~

1. clik on CALENDAR

2. at th bottm of th calendar, in the middl.....see "Add New Event".....clik that

3. add yuor info , yuor title, like 'sara/dr appt or scan, thn in commnts yuo can giv mor info, like CT/PET and bloodwrrk

4. now chanj th day mnth, etc and make shr to chanj ths to a public event, so otthr peepl can see ths on tth calndr, like KATHY, so she can post tth calndr evnts in tth morning.

doing ths owrslvs hels BIGTIME. trutth. kathy has a fultime job BESIDS hr volnteer stuf heer and we DO apresheat hr effrts. so anytthng we can do to help hr owt we wil sertnly do, yes?

why thank yuo SO VRRY MCCH!!!!! Lamby and i ar only heer to assist




And here are more tips from other board members. Feel free to add your own if you have one.

Sara, thanks for doing this.

Unofficial NED Survey
I think a lot of people, especially the newbies find the Unofficial NED Survey full of hope, so you might want to include it. This is the latest one:

Unofficial NED Survey



LLS Financial Resources Financial Resources from the Leukemia and Lymphoma Society



i lov ths link so mcch tht i thnk it shood be a prrt of tth welcom wagon.....


The Median Isn't The Message

thanks TONS anjou!!!!



Clinical Trials

Adding a link to Clinical Trials . You can also call the Lymphoma Research Foundation at 1-800-500-9976 and they will conduct a clinical trial search for you. Or email them at helpline@lymphoma.org



Acronyms

Post explaining all those initials commonly used here.

http://forums.webmagic.com/ubbthreads/sh...;gonew=1#UNREAD




Sub Types

A link to a list of NHL Sub Types




Here's a tip to help maintain your privacy as this forum is both indexed and highly ranked by google: do not list your full name in your forum information (click on My Home at the top and Personal Information at the bottom of that page). If your full name is listed your link to lymphoma could be found by prospective employers who could then subtly and illegally discriminate against you. One forum member believes that happened to them.



Give Back Shopping

This is a post with sites that give back to cancer orgs when you buy through them. If you're looking for red (blood cancer) or lime (lymphoma) bracelets, check these out.



A thread where we posted our ages at diagnosis



Oral Mucositis

A Post by Karl about Oral Mucositis and ways to help

a vrry good resors



Most patients say chemo not as bad as you think

http://forums.webmagic.com/ubbthreads/sh...ge=0#Post724225



Latent Effects of Chemo

I'm posting this here not to affect anyone's treatment decisions but because aftercare is an important part of treatment. I think it's important that we as patients not be forgotten after remission is achieved.

Latent Effects of Treatment



Nice Intro for Newbies.
http://forums.webmagic.com/ubbthreads/sh...ge=0#Post747978



And last but not least

How To Bump A Thread
Method for 'bumping' a thread WITHOUT adding an entry is to:

1) add anything, ie a word or two as a "REPLY"

2) hit enter

3) Go back to your 'reply' and pick "edit" -- delete the post that you just added. There is a box at the bottom that actually says, "DELETE THIS POST". Then it asks you to confirm that you really want to delete it.

When finished, the thread magically goes to the top of the 'current threads' list -- and it does so without an additional 'entry'.

And for posterity a link to our old Welcome Wagon thread. Where this all began.

The Ole' Girl
__________________
__________________________________________________
7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
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  #2  
Old 05-31-2008, 05:05 AM
pine soul's Avatar
pine soul pine soul is offline
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Join Date: Sep 2006
Posts: 4,733
Default Re: The Welcom Wagon - New

Magazines

The Cure

Read It Onliine or
Get your free subscription (free for people with cancer and surivivors) here

Coping Magazine is not free but is also a good magazine for people with cancer. Coping Magazine
__________________
__________________________________________________
7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
Reply With Quote
  #3  
Old 07-23-2008, 10:30 AM
HereNow's Avatar
HereNow HereNow is offline
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Join Date: Apr 2007
Posts: 1,144
Default STRESS TECHNIQUES

Ways to deal with STRESS:

Title: "For Those Among Us Weathering Storms..."

Thanks to Kathy (gracie82159)

http://forums.webmagic.com/ubbthreads/sh...ge=0#Post831821
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  #4  
Old 08-26-2008, 07:26 AM
pine soul's Avatar
pine soul pine soul is offline
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Join Date: Sep 2006
Posts: 4,733
Default Re: Restoration

Adding a link to Restoration - the thread where people express in verse or whatever way they prefer their journeys through NHL and life.
__________________
__________________________________________________
7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
Reply With Quote
  #5  
Old 11-16-2008, 12:47 PM
Debbiefix's Avatar
Debbiefix Debbiefix is offline
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Join Date: Aug 2005
Posts: 3,417
Default Re: The Welcom Wagon - New

I guess I had to type something here in order to bump it up. It wouldn't let me delete this post.
__________________
June 2005 NHL low grade, stage 4 SLL/CLL
August 2005 Rituxan x4
November 2005 Partial response
Dec 2005-Jan 2006 Rituxan x8
June 2006 Remission
On to Rituxan maintenance every 6 months for 2 years
November 2006 as close to NED as possible
May 2007 - even better scans!
scans are every 6 months
November 2007 No Evidence of Disease!!!!
February 2008 Rituxan maintenance complete
May 2008 Completely normal scans
November 2008 PET scan - NED
graduated to annual scans!
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  #6  
Old 12-24-2008, 05:31 AM
skylin's Avatar
skylin skylin is offline
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Join Date: Aug 2003
Location: Cincinnati, Ohio
Posts: 11,314
Default Re: The Welcom Wagon - New

The New Give Back Shoppng Thred
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Against the force of laughter nothing can stand.-- Mark Twain
The Welcome WagonCincy Heers To Hope LTN TEAM
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  #7  
Old 12-29-2008, 10:49 AM
pine soul's Avatar
pine soul pine soul is offline
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Join Date: Sep 2006
Posts: 4,733
Default Re: Trial Information and Experiences

Here is a link to a thread containing board members' experiences with clinical trials. Trial Information

Feel free to add your own trial experience. In doing so we can keep an ongoing record of peoples' experiences with trials which may help someone considering trials.
__________________
__________________________________________________
7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
Reply With Quote
  #8  
Old 03-24-2009, 04:50 AM
pine soul's Avatar
pine soul pine soul is offline
Senior Member
 
Join Date: Sep 2006
Posts: 4,733
Default

bumping to the top for Sarah

Does anyone know of a way to delete a bump without moving the bumped post back to where it was??
__________________
__________________________________________________
7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
Reply With Quote
  #9  
Old 03-24-2009, 10:50 AM
gracie82159's Avatar
gracie82159 gracie82159 is offline
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Join Date: Feb 2006
Location: Richland Center WI
Posts: 5,889
Default

Quote:
Originally Posted by pine soul View Post
bumping to the top for Sarah

Does anyone know of a way to delete a bump without moving the bumped post back to where it was??
Hmmm...I tried but when you delete your own post, the thread stays where it was. I don't think you can edit out your words either, but I'll try that...
__________________
dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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  #10  
Old 04-23-2009, 10:15 AM
gracie82159's Avatar
gracie82159 gracie82159 is offline
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Location: Richland Center WI
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Default

Moving this up to the top since we seem to have quite a few new people recently...it may need to be revised again because some of the information in it no longer applies to the board in this new format. If no one else revises, I will work on it in the next week or two...

Kathy
__________________
dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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