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"We would like to keep this thread with NO REPLIES in order to keep it short and manageable -- and to aid and expedite the understanding of new arrivals.
In order to do that, we urge you to: 1) place comments, thank yous, etc. in another thread; 2) use the "How to Bump a Thread" method at the bottom to send this thread back to the top of the currently 'active' threads. Thanks." From Skylin ![]() Thot we wd pt tgethr a reel welcom. so heer it is. welcom to owr 'famly' glad ya fownd us, bt sory ya *had* to. heer is a list of good 'bginnr' threds to help ya get to no us, and get starrtd heer. pleez feel free to jump rite in. NHL Our Stories CHOP-R Tips Whoooooo are you? Our Occupations What's In A Name SCT Tips How To Use The Board Tips Shingles Warning Copay Assistance Financial Help Re Treatment LLS Copay Assistance oh, ya GOTA meet MARK thers som fun in ths guy ttht yuo js gota *tast* Mark's For New Arrival Tips Depression Self Assessment Tool Another Depression Self Assessment Tool Two Good Books about Depression The Shiznit Great Ideas For Gifts whew! ok! anybdy els hav som cool Welcom Wagon threds? or advis? or 'stuf'? do yuor best to RELAX....trutth trusst me, its al yuo cn do. HEERS TO HOPE! sara www.lymphomation.org add to ths, if yuo can find good posts or can thnk of tthngs tht can HELP TH NEWBYS OWT!!!!! heer is a GRATE THNG........at the top of the screen yuo wil see "my home', "Main Index", Search", Active Topics", Who's Online, FAQ, User List, and th big one CALENDAR....ths is th one i want to talk abowt CALENDAR and how to use it to add yuor own appts ~ 1. clik on CALENDAR 2. at th bottm of th calendar, in the middl.....see "Add New Event".....clik that 3. add yuor info , yuor title, like 'sara/dr appt or scan, thn in commnts yuo can giv mor info, like CT/PET and bloodwrrk 4. now chanj th day mnth, etc and make shr to chanj ths to a public event, so otthr peepl can see ths on tth calndr, like KATHY, so she can post tth calndr evnts in tth morning. doing ths owrslvs hels BIGTIME. trutth. kathy has a fultime job BESIDS hr volnteer stuf heer and we DO apresheat hr effrts. so anytthng we can do to help hr owt we wil sertnly do, yes? why thank yuo SO VRRY MCCH!!!!! Lamby and i ar only heer to assist ![]() And here are more tips from other board members. Feel free to add your own if you have one.Sara, thanks for doing this. Unofficial NED Survey I think a lot of people, especially the newbies find the Unofficial NED Survey full of hope, so you might want to include it. This is the latest one: Unofficial NED Survey ![]() LLS Financial Resources Financial Resources from the Leukemia and Lymphoma Society ![]() i lov ths link so mcch tht i thnk it shood be a prrt of tth welcom wagon..... The Median Isn't The Message thanks TONS anjou!!!! ![]() Clinical Trials Adding a link to Clinical Trials . You can also call the Lymphoma Research Foundation at 1-800-500-9976 and they will conduct a clinical trial search for you. Or email them at helpline@lymphoma.org ![]() Acronyms Post explaining all those initials commonly used here. http://forums.webmagic.com/ubbthreads/sh...;gonew=1#UNREAD ![]() Sub Types A link to a list of NHL Sub Types ![]() Here's a tip to help maintain your privacy as this forum is both indexed and highly ranked by google: do not list your full name in your forum information (click on My Home at the top and Personal Information at the bottom of that page). If your full name is listed your link to lymphoma could be found by prospective employers who could then subtly and illegally discriminate against you. One forum member believes that happened to them. ![]() Give Back Shopping This is a post with sites that give back to cancer orgs when you buy through them. If you're looking for red (blood cancer) or lime (lymphoma) bracelets, check these out. ![]() A thread where we posted our ages at diagnosis ![]() Oral Mucositis A Post by Karl about Oral Mucositis and ways to help a vrry good resors ![]() Most patients say chemo not as bad as you think http://forums.webmagic.com/ubbthreads/sh...ge=0#Post724225 ![]() Latent Effects of Chemo I'm posting this here not to affect anyone's treatment decisions but because aftercare is an important part of treatment. I think it's important that we as patients not be forgotten after remission is achieved. Latent Effects of Treatment ![]() Nice Intro for Newbies. http://forums.webmagic.com/ubbthreads/sh...ge=0#Post747978 ![]() And last but not least How To Bump A Thread Method for 'bumping' a thread WITHOUT adding an entry is to: 1) add anything, ie a word or two as a "REPLY" 2) hit enter 3) Go back to your 'reply' and pick "edit" -- delete the post that you just added. There is a box at the bottom that actually says, "DELETE THIS POST". Then it asks you to confirm that you really want to delete it. When finished, the thread magically goes to the top of the 'current threads' list -- and it does so without an additional 'entry'. And for posterity a link to our old Welcome Wagon thread. Where this all began. The Ole' Girl
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#2
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Magazines
The Cure Read It Onliine or Get your free subscription (free for people with cancer and surivivors) here Coping Magazine is not free but is also a good magazine for people with cancer. Coping Magazine
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#3
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Ways to deal with STRESS:
Title: "For Those Among Us Weathering Storms..." Thanks to Kathy (gracie82159) http://forums.webmagic.com/ubbthreads/sh...ge=0#Post831821 |
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#4
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Adding a link to Restoration - the thread where people express in verse or whatever way they prefer their journeys through NHL and life.
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#5
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I guess I had to type something here in order to bump it up. It wouldn't let me delete this post.
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June 2005 NHL low grade, stage 4 SLL/CLL August 2005 Rituxan x4 November 2005 Partial response Dec 2005-Jan 2006 Rituxan x8 June 2006 Remission On to Rituxan maintenance every 6 months for 2 years November 2006 as close to NED as possible May 2007 - even better scans! scans are every 6 months November 2007 No Evidence of Disease!!!! February 2008 Rituxan maintenance complete May 2008 Completely normal scans November 2008 PET scan - NED graduated to annual scans! |
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#6
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM |
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#7
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Here is a link to a thread containing board members' experiences with clinical trials. Trial Information
Feel free to add your own trial experience. In doing so we can keep an ongoing record of peoples' experiences with trials which may help someone considering trials.
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#8
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bumping to the top for Sarah
Does anyone know of a way to delete a bump without moving the bumped post back to where it was??
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#9
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Hmmm...I tried but when you delete your own post, the thread stays where it was. I don't think you can edit out your words either, but I'll try that...
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind... |
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#10
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Moving this up to the top since we seem to have quite a few new people recently...it may need to be revised again because some of the information in it no longer applies to the board in this new format. If no one else revises, I will work on it in the next week or two...
Kathy
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind... |
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