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#1
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Dear friends,
I am happy to share some good news: Leukemia and Lymphoma Society offers free support 'First Connection' program for newly diagnosed patients. I just completed the training and am happy to report that there are multiple resources available including calls and financial help. The latest and greatest is the co-pay assistance program which covers Hodgkins and Non-Hodgkins co-pays up to $2,500!!! (this is in addition to the $500 for travel, parking program). So I am looking forward to volunteering and being the first connect ambassador See these links for further info: First Connect - http://www.leukemia-lymphoma.org//al...item_id=398848 Co-Pay Assistance - http://www.leukemia-lymphoma.org/all...=452658#income
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Natalia NSHD stage IIa bulky diagnosed 10/30/05 started ABVD chemo 11/21/05 baby boy born 10/3/05 completed 6 cycles of ABVD - PET/CT positive 2 ESHAP cycles + 2 IGeV cycles done stem cells collected (4.9 mln) negative PET/CT - finally http://forums.lymphoma.com/images/ub...lins/smile.gif auto SCT 9/7 - 9/26/06 CMV pneumonia 10/06 thru 1/07 MRT rads 1/30/07 - involved 25.2 Gy to chest 2/20/07 - SO DONE WITH CANCER!!! BACK TO LIFE! |
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#2
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Natalia,
Thank you. It is so nice of you to share your experience with those who are newly diagnosed. I think that is the hardest time when most of us felt all alone. Heidi
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4/07 Diag fNHL, Grade 1/2, Stage 4, BMI 15% / 6/07-7/07 Rituxan / 3/08 Diag w/Thyroid Cancer / 5/08-9/08 R-CHOP / 10/08 NED / 10/08 Thyroidectomy and RAI / 3/09 Relapse-Transformation-30% DLBCL / 4/09 RICE / 6/09 R-BEAM and Auto SCT / 9/09 Rads / 7/09, 11/09, 2/10 NED |
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#3
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Thanks Natalia! I'm going to add a link to this post to our Welcome Thread
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#4
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HIFVE! ths roks an so do yuo!!!!!
thanks nansy fr addng it! YAY
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM |
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#5
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I do have a question regarding the travel assistance. We did a lot of traveling, but I know my husband didn't keep gas receipts. Does that rule out our chance to get the assistance?
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Heather 34 mediastinal DLBC stage 2, SVCS, pericardial effusion-pericardial window R-CHOP x6 completed 7/07 Rads 4500 completed 10/07 NED 8/07, 2/08, 7/08, 2/09 SVCS remains along with obliteration/fibrosis of major chest veins |
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#6
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Heather I may be mistaken but I think Natalia is referring to the $500 you can get for misc uncovered expenses. This includes parking and travel. If you don't have records of that though you can get it for lots of things. Uncovered prescription costs is what I used it for. You do need proof but there are lots of ways to use it.
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#7
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Thanks, I can check to see if I've spent enough in prescriptions, but my insurance actually was pretty good about that.
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Heather 34 mediastinal DLBC stage 2, SVCS, pericardial effusion-pericardial window R-CHOP x6 completed 7/07 Rads 4500 completed 10/07 NED 8/07, 2/08, 7/08, 2/09 SVCS remains along with obliteration/fibrosis of major chest veins |
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#8
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I think you can also use copays, deductibles, etc etc. Any expenses that are related to your illness. Insurance premiums? And I didn't have to actually send in receipts. I got a statement that the pharmacy can print out for you. It says how much you paid and how much insurance paid. You can get that at any pharmacy and LLS accepts that as proof of payment. LLS's financial year goes from June or July of one year to the next so any expenses from last July through today would qualify for this years assistance. Hope that helps.
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed |
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#9
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Perhaps, I should clarify the 2 programs.
the $500 per year is for travel and parking. the co-pay is strictly for co-pays and meds. Both have application ($500 comes as a check to you from a local LLS chapter and the $2500 usually is paid directly to provider/pharmacy and comes from national fund). As for gas -- you don't need to have the gas receipts to be reimbursed ... if you have a social worker within your hospital she just needs to authorize/sign your reimbursement request where you list a log with your dates of visits, miles driven and any parking fees encountered (I was advised to save the parking receipts). Last year we had to shell out about $1,000 for parking and gas - crazy, huh?! So you can be alove but broke - thus every bit helps! If you have further questions don't hesitate to contact your local chapter - they are pretty helpful! http://www.leukemia-lymphoma.org/all...p?item_id=9343
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Natalia NSHD stage IIa bulky diagnosed 10/30/05 started ABVD chemo 11/21/05 baby boy born 10/3/05 completed 6 cycles of ABVD - PET/CT positive 2 ESHAP cycles + 2 IGeV cycles done stem cells collected (4.9 mln) negative PET/CT - finally http://forums.lymphoma.com/images/ub...lins/smile.gif auto SCT 9/7 - 9/26/06 CMV pneumonia 10/06 thru 1/07 MRT rads 1/30/07 - involved 25.2 Gy to chest 2/20/07 - SO DONE WITH CANCER!!! BACK TO LIFE! |
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