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#1
10-01-2007, 03:42 AM
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The Welcom Wagon
Thot we wd pt tgethr a reel welcom. so heer it is.
 welcom to owr 'famly'  glad ya fownd us, bt sory ya *had* to. heer is a list of good 'bginnr' threds to help ya get to no us, and get starrtd heer. pleez feel free to jump rite in.  NHL-Our Stories CHOP-R Tips Whoooooo Are You? Who Who? Who Who? What's In A Name? SCT Tips How to use the Bord tips Shingles warning Co-pay assistance Financial help RE-treatment LLS Co-Pay Assistance oh, ya GOTA meet MARK thers som fun in ths guy ttht yuo js gota *tast*  Mark's FOR NEW ARRIVALS thred Depressn Self Assessmnt Tool Anotthr Depressn Self Assessmnt Tool Two good books for Depressn/anxiety The Shiznit GRATE IDEAS FOR GIFTS whew! ok!  anybdy els hav som cool Welcom Wagon threds? or advis? or 'stuf'?       do yuor best to RELAX....trutth trusst me, its al yuo cn do. HEERS TO HOPE!  sara www.lymphomation.org add to ths, if yuo can find good posts or can thnk of tthngs tht can HELP TH NEWBYS OWT!!!!!  heer is a GRATE THNG........at the top of the screen yuo wil see "my home', "Main Index", Search", Active Topics", Who's Online, FAQ, User List, and th big one CALENDAR....ths is th one i want to talk abowt CALENDAR and how to use it to add yuor own appts ~ 1. clik on CALENDAR 2. at th bottm of th calendar, in the middl.....see "Add New Event".....clik that 3. add yuor info , yuor title, like 'sara/dr appt or scan, thn in commnts yuo can giv mor info, like CT/PET and bloodwrrk 4. now chanj th day mnth, etc and make shr to chanj ths to a public event, so otthr peepl can see ths on tth calndr, like KATHY, so she can post tth calndr evnts in tth morning. doing ths owrslvs hels BIGTIME. trutth. kathy has a fultime job BESIDS hr volnteer stuf heer and we DO apresheat hr effrts. so anytthng we can do to help hr owt we wil sertnly do, yes? why thank yuo SO VRRY MCCH!!!!! Lamby and i ar only heer to assist 
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM 
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#2
10-01-2007, 03:47 AM
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Re: The Welcom Wagon
Great idea! I know Skye over on the Hodgkins side has their "Newcomers 101" post as a link in her signature line.
Nice to have this stuff all together in one place...HIGH FIVE SARA!! Kathy
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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#3
10-01-2007, 06:09 AM
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Re: The Welcom Wagon
Great, Sara!
What a superb way to welcome people.
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Jerry 64 (2010) 2/22/05: dx follicular grade 1, stage 3A, diffuse small cleaved B-cell nHL--I will fight it, and I will win! Risk factors: psoriasis; psoriatic arthritis; anti-TNF drug (Enbrel) 6 years for the arthritis Other factors: diabetes Type II; IBS & Crohn's Disease 3/15/05: FND+R protocol began; 7/7/05: CT scan shows NED! 7/18/05: 6th (last) round of chemo finished! Now the healing begins. 3/22/10: NED continues to be my dear and respected 4.5-year friend!
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#4
10-01-2007, 06:24 AM
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Re: The Welcom Wagon
COOL COOOOL COOOOOOOOOOOL!! I appreciate this board so much. I have been reading till my eyeballs drop! Thank you for all being here...
Cheryl
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Hard things are put in our way, not to stop us, but to call out our courage and strength. ~~anonymous~~ Cheryl Mom to a Hero - Kyler, dx'ed at 25 6/12/07 misdx- DLBC 1B 6/28/07 correct DX - Burkitt's 4B TX HYPER C-VAD X4 W/RITUXIN began 6/30/07 8/02/07 Ommaya Port installed in head NED 12/14/2007 Rads 224 x 12 completed 01/23/08 Ommaya Port removal 01/28/2008 www.caringbridge.org/visit/kylerkelley
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#5
10-01-2007, 06:43 AM
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Re: The Welcom Wagon
Cheryl!
Welcome to our family.
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Jerry 64 (2010) 2/22/05: dx follicular grade 1, stage 3A, diffuse small cleaved B-cell nHL--I will fight it, and I will win! Risk factors: psoriasis; psoriatic arthritis; anti-TNF drug (Enbrel) 6 years for the arthritis Other factors: diabetes Type II; IBS & Crohn's Disease 3/15/05: FND+R protocol began; 7/7/05: CT scan shows NED! 7/18/05: 6th (last) round of chemo finished! Now the healing begins. 3/22/10: NED continues to be my dear and respected 4.5-year friend!
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#6
10-01-2007, 08:32 AM
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Re: The Welcom Wagon
Welcome!!
Judy
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dx: 4/04 NHL Large B Cell, tx: 6 CHOP/R w Neulasta; Missed DX 9/03 DVT, PE, - leg/lung clot http://www.preventdvt.org/assessment...ssessment.aspx Risks: RA, anti-TNF alpha drug (ENBREL)-5 years; clotting abnormality
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#7
10-01-2007, 08:55 AM
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Re: The Welcom Wagon
Thank you Sara! And Heers to Hope, all newcomers...we are here for you!
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Although the world is full of suffering, it is full also of the overcoming of it. Helen Keller Even his griefs are a joy long after to one that remembers all that he wrought and endured. Homer (800 BC - 700 BC), The Odyssey ______________________________________________ BF diag. 10/06 NHL Mediastinal Diffuse Large B Cell Stage 3 02/07 - end of 6th chemo 03/07 - 2 chemos added - lingering effects/left shoulder 3/12/07 - Surgery biopsy - it's a cyst! Whew. 5/07 - 20X Radiation began
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#8
10-01-2007, 10:35 AM
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Re: The Welcom Wagon
Sara, thanks for doing this.
I think a lot of people, especially the newbies find the Unofficial NED Survey full of hope, so you might want to include it. This is the latest one: http://forums.webmagic.com/ubbthreads/sh...ge=1#Post530693
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Wishing serenity and NED to all, Carol *********** Can WE do it? Yes WE can! 6/05, @ 58 yrs dx: Low Grade B-cell NHL, poss. Marginal Zone w/Follicular colonization, Stage IIA, subdiaph. nodes only 7/05 R-CVP 8/05 - 11/05 = 5 x R-CHOP, port, Neulasta & Aranesp 11/05 PET/CT = NED 12/05 = 2 more R-CHP (no Vin)try to reduce 1 last lrg node. 3/21/06 Biopsy last lg node = NED 9/06 start Rituxin maint every 6 month 10/08 still NED (almost 3 years)
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#9
10-03-2007, 01:46 AM
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Re: The Welcom Wagon
GRATE addishn, thanks carol!
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM
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#10
10-09-2007, 06:19 AM
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Re: The Welcom Wagon
Help!!! I need to know how to make/save/ add whatever I am suppose to do for a signature..
Thank you!!!! cheryl
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Hard things are put in our way, not to stop us, but to call out our courage and strength. ~~anonymous~~ Cheryl Mom to a Hero - Kyler, dx'ed at 25 6/12/07 misdx- DLBC 1B 6/28/07 correct DX - Burkitt's 4B TX HYPER C-VAD X4 W/RITUXIN began 6/30/07 8/02/07 Ommaya Port installed in head NED 12/14/2007 Rads 224 x 12 completed 01/23/08 Ommaya Port removal 01/28/2008 www.caringbridge.org/visit/kylerkelley
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