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#1
08-31-2007, 03:22 AM
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FOR NEW ARRIVALS
Things You Might Need To Know
R-CHOP TIPS http://forums.webmagic.com/ubbthreads/sh...;gonew=1#UNREAD R-CHOP CHEMO ENERGY CHART http://forums.webmagic.com/ubbthreads/sh...a2b2f96ff1693f5 Who Are You: Participant Occupations http://forums.webmagic.com/ubbthreads/sh...ge=0#Post380309 NHL: Individual Stories & Histories http://forums.webmagic.com/ubbthreads/sh...;gonew=1#UNREAD Participants Explain Their Screen Names http://forums.webmagic.com/ubbthreads/sh...;gonew=1#UNREAD ====== To add your SIGNATURE, ie. short history, ie. diagnosis and treatment to EACH OF YOUR POSTS, 1) click on "MY HOME" 2) click on "Edit" next to "Personal Info, email, password" 3) enter your info 4) Hit "Preview" or "Submit" ====== Oh, and don't be afraid to vent your spleen: we do it all the time. 
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#2
08-31-2007, 05:58 AM
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Re: FOR NEW ARRIVALS
grate iddea mark.....can i add?
anjou's depressn self assesmnt tool Co-Pay Assist Program Financl Help re treetmnts LLS financl assist Bord Featurs and how to use them thred hifive! HEERS TO HOPE! sara
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM
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#3
08-31-2007, 06:11 AM
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Re: FOR NEW ARRIVALS
Mark and Sara - you two are just too wonderful! This will help new folks a lot. What a great team we have here, don't want to forget Kathy and Linda, as well as others, for all of their contributions.
Lots of XOXOXOX for you all! Louise
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Louise DX 4/06, age 63, Follicular NHL stage 3, grade 2, bulky CHOP-R 8 cycles 4/06 - 9/06 PET/"Prayer" scan 10/06 - stable 17 Rad. treatments - abdominal area 11/06 1/07 R maintenance started PET/CT scan 2/07 - stable disease 2/07 Neutropenia! R maintenance discontinued, Prednisone 3/07, then IIVG 5/07. Resolved finally 8/07 9/07, 1/08, 5/08, 9/08, 1/09 CT scans stable
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#4
08-31-2007, 05:18 PM
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Re: FOR NEW ARRIVALS
Great idea Mark!
I've seen some over on the Hodgkins side who put links to threads in their signatures. I thought that was a great idea too! Kathy
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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#5
09-10-2007, 05:01 PM
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Re: FOR NEW ARRIVALS
This is so helpful. Can someone tell me what these abbreviations mean--NED? etc. I'd like to be able to understand diagnosis for posters, and I can figure most out, but not others. Is there a cheat sheet somewhere?
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#6
09-10-2007, 05:19 PM
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Re: FOR NEW ARRIVALS
hi fighting!
 NED is th brass ring we all striv for, No Evid of Diseese.  may we all be dansing wtth NED! and ask away! truth, PSA = Pre scan anxity, any otthrs? dx= diagnossis tx=treetmnt
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM
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#8
09-10-2007, 05:32 PM
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Re: FOR NEW ARRIVALS
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Anjou, follicular large cell,Stage 2, dx 9/99, CHOPx3, 3600 rad, rituxan x4, should have been dx'd 7/97, --get second opinions on biopsies!!! Check www.lymphomation.org
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#9
05-06-2008, 08:31 AM
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Re: FOR NEW ARRIVALS
More..."jess tryin' to be helpful" stuff... xxoo, m
======== Before, During, and After R-CHOP (photos) http://forums.webmagic.com/ubbthreads/sh...99790a78fffd581 Attitude is Everything (essay) http://forums.webmagic.com/ubbthreads/sh...99790a78fffd581
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#10
05-08-2008, 07:11 AM
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Re: FOR NEW ARRIVALS
Bump for dgeesaman
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11/30/07 Dx follicular NHL – Grade I – Stage IVA BMI 5% Check up’s every 3 months Stable – on watch & wait "Pain is inevitable, suffering is optional" - Kathleen Casey Theisen
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