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#1
02-23-2007, 07:41 AM
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SCT Tips
I did a couple of searches for tips and links on Stem Cell Transplants from board members both on the Hodgkins and Non Hodgkins side. For myself and others going into a transplant soon, please feel free to add any advice and experiences you have to share. I know there are a couple of others besides myself and some on the Hodgkins side soon to go into transplant. So here are the links:
SCT 101 More Tips More Tips! And More Some More Tips General Information from Cancer Backup Site From Cyberfamily Site Tips for Caregivers More Tips! Caregivers Booklet from National Bone Marrow Org Another Caregivers Booklet Thanks to all who had posted links to these previously. I poached a bunch from a post that Anne had made so thank you Anne for taking the time to compile them. Hope they help someone and if anyone has some to add please do.
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed 
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#2
02-23-2007, 08:07 AM
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Re: SCT Tips
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Sarah 12/17/04 MCHD IIIB, non-bulky ABVD X 6, remission after max 3 cycles 6/21/06 Relapse after 14 mo’s remission 2 cycles ICE - NED, >63% reduct Rads x 12, 24 Gy PRE-SCT 10/17-11/7/06 Auto SCT (Busulfan, VP16, Cytoxan) Relapse 3 months post-SCT 6-9/07 Gemzar/Navelbine Remission after 4 treatments, relapse after next 4 1/16/08 SGN-35 clinical trial started (Stage IVB going in) My blog: http://journeytobabeland.blogspot.com
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#3
02-23-2007, 08:19 AM
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Re: SCT Tips
And these:
Post on things to bring and more SCT Roll Call SCT Talk (describes process) SCT Alumni (had good tips)
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Sarah 12/17/04 MCHD IIIB, non-bulky ABVD X 6, remission after max 3 cycles 6/21/06 Relapse after 14 mo’s remission 2 cycles ICE - NED, >63% reduct Rads x 12, 24 Gy PRE-SCT 10/17-11/7/06 Auto SCT (Busulfan, VP16, Cytoxan) Relapse 3 months post-SCT 6-9/07 Gemzar/Navelbine Remission after 4 treatments, relapse after next 4 1/16/08 SGN-35 clinical trial started (Stage IVB going in) My blog: http://journeytobabeland.blogspot.com
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#4
02-23-2007, 08:31 AM
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Re: SCT Tips
     Thank you Sarah!
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__________________________________________________ 7/06 Diagnosed PMLBC IVB @ age 42 CHOPR 4x PET uptake Oct 06 switched to DA-EPOCH Finished 6th cycle total PET uptake 12/06 Finished 8 cycles 1/07 PET uptake Feb 07 Lung Biospsy Pos SCT May 07 Bexxar Trial NED Aug 07 NED Nov 07 NED AUG 08 NED Nov 08 The Welcome Wagon for newly diagnosed
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#5
02-23-2007, 11:15 AM
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Re: SCT Tips
HIFIV to yuo guys! i'm savng tths ffor futr bumpng!
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM
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#6
02-23-2007, 11:59 AM
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Re: SCT Tips
__________________
~Kat Mom to Aidan ~4 1/2 and Karina ~3 Husband, Michael, diagnoised 8/4/06 with T cell rich B cell lymphoma Stage IV 7/22/06: Major surgery biopsy and kidney stints 9/7/06-12/22/06: 6 rounds of R/CHOP 1/30/07: AUTO SCT on clinical study 2/5/07: Happy New Birthday! 2/20/07: Released from hospital. We made it! 2/26/07: Happy Real Birthday~29! 4/3/07: REMISSION!!
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#8
02-23-2007, 04:27 PM
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Re: SCT Tips
Nancy,
Although I'm not facing an impending SCT, I'd just like to say thanks for putting this together and reaching out to help others who might be. You are very quickly becoming one of those "quiet angels" here! Kathy
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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#9
02-24-2007, 06:31 AM
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Re: SCT Tips
Great idea! Here is another SCT post from Tiffane1 that I'd like to add to this post.
In addition, I would like to emphasis the Survivor Guide for SCT/BMT, which has lots of helpful information. Good luck and best wishes to those about to go through this journey. You can do it! Best Wishes, Anne
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HL Survivor - Sister's Shops: http://www.hopedreamsdesigns.com http://gifts4awareness.com http://www.thelymphomashop.com
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#10
02-25-2007, 01:01 PM
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Re: SCT Tips
Thank you so much for this post, and for sparking off all of the supporting posts. I found so much that was useful and/or reassuring in the links and feel that I'm heading into the SCT on Friday in much better shape than I would have otherwise. Good luck with your own treatment plan, Liz
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Dx Aggressive DLBC 08/04 8 x CHOP-R complete 03/05 Relapse 05/05 R-ICE x 3, mini-BEAM x 1 11/05 Completed 20 rads 12/05 NED! 02/06 Allo SCT planned 04/06 Relapsed - allo off. 05/06 Started Gem-P x 6 03/07 Auto SCT, using Gemcitabine - 8 weeks in hospital due to complications :-( 08/07 Clear scans! 11/07 More clear scans! 02/08 And more! 06/08 And more! 09/08 Still more! 01/09 NED goes on... :-)
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