![]() |
|
#1
|
||||
|
||||
|
I would like to hear from anyone that can give me first hand info on a stem cell transplant ( donor type in particular ) for transformed indolent follicular lymphoma, although anyone who has had a transplant for any type of lymphoma would be greatly appreciated also.
Thanks, Tiffany
__________________
Husband diagnosed with Indolent Follicular Lymphoma which has transformed into aggressive, doctor now wants him to have a Allogeneic transplant. |
|
#2
|
||||
|
||||
|
HI Tiffany, welcome to our board. I can't help you first hand, but there are many here who can, if you just wait a few minutes. In fact we have some here who have gone through it, some who are going through it and some who will be going through it. You've definitely come to the right place.
__________________
June 2005 NHL low grade, stage 4 SLL/CLL August 2005 Rituxan x4 November 2005 Partial response Dec 2005-Jan 2006 Rituxan x8 June 2006 Remission On to Rituxan maintenance every 6 months for 2 years November 2006 as close to NED as possible May 2007 - even better scans! scans are every 6 months November 2007 No Evidence of Disease!!!! February 2008 Rituxan maintenance complete May 2008 Completely normal scans November 2008 PET scan - NED graduated to annual scans! |
|
#3
|
||||
|
||||
|
Hi Tiffany,
Welcome to the board. I can't give you firsthand info, but as Debbie said, there are several people here who can, and I'm certain they will pipe up here soon. Is it you who needs the transplant or someone you know? Whichever it is, I wish you the best. It's not an easy ride, but it is doable. Kathy
__________________
dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind... |
|
#4
|
||||
|
||||
|
Hold on, tiffane, there *are* people with indolent lymphoma who have had SCTs here. And there are lots of people in CA here who know of good hospitals, etc., for SCTs. They'll certainly see this.
Please keep checking in with us. There are lots of caring people here with a lot of great resources to share. They can help you. Jeanne
__________________
Jeanne, wife of George dx 4/04 diffuse large B cell NHL, stage IIIA, EPOCH/Rx5 successful cisplatin+ARA-C x1 given after wrong dx of recurrence!! No Evidence of Disease since July 2004, still going strong |
|
#5
|
|||
|
|||
|
Rick went through it on March 29. He is doing great. You can read about it all at Caring Bridge.
__________________
husband dx 10/99 with mixed stage 3 Follicular Chop x8 12/99-05/00 Remission over 10/05 Began RICE on 10/19/05 Auto Stem Cell Transplant 03/30/06 http:///www.caringbridge.org/visit/rickbutler |
|
#6
|
|||
|
|||
|
Tiffane,
Welcome aboard. My husband had an auto transplant, so I can't offer what you're looking for. As others have said, stick around, someone will show up. Some folks on the Hodgkins side of this message board might be around to answer questions as well. One other thing that was very help to us was a visit to www.lymphomation.org. Here's a link to the treatment options they explain. http://www.lymphomation.org/treatment-overview.htm I wish you the best, ghio
__________________
Husband diagnosed 1/05 with MCL. 10/10/05 r-hyper-CVAD begins. 11/2/05 surgery to remove perforated sm. intestine & treat peritonitis. 5/23/06 NED. 8/16/06 Auto SCT. 10/2007 All Clear |
|
#7
|
||||
|
||||
|
hi tiffane, welcom tto the bord. a grate ffrend, cliff has wnt tthru an allo BMT and has bloggd tthe whole tthng. heer is his link. but his was a refractry agressiv tipe, so not tthe same as yuors.
http://1speeder.com/tiki/tiki-view_blog.php?blogId=1 he has LODES of links along tthe lft hand side, and tons of info. ther mite be some links that wood hav some good info, in genral tho. his sistr was the donr and she wwas a half matcch. hes doin good. HEERS TO HOPE! ![]() sara
__________________
Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM |
|
#8
|
||||
|
||||
|
Thank all of you so much for your responses. I guess I have come to the right place : - ) for the person who asked if it was me that needs the SCT .... No, it's my husband of 29 years : - (
Tiffany
__________________
Husband diagnosed with Indolent Follicular Lymphoma which has transformed into aggressive, doctor now wants him to have a Allogeneic transplant. |
|
#9
|
||||
|
||||
|
Tiffany,
You have definitely come to the right place. There are some wonderful people here, very willing to help. If you have questions, ask away...someone will be along to answer them in no time! Kathy
__________________
dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind... |
|
#10
|
|||
|
|||
|
Hi Tiffany,
So sorry you need to find us. I haven't had an SCT, but others here have. Also, there are many on the hodge side that have done this. At least 4 in the last couple months. Most of those have been AUTO transplants rather than ALLO. Welcome! I hope you get the info you need. Sending tons of strength and calm your way. Judy
__________________
dx: 4/04 NHL Large B Cell, tx: 6 CHOP/R w Neulasta; Missed DX 9/03 DVT, PE, - leg/lung clot http://www.preventdvt.org/assessment...ssessment.aspx Risks: RA, anti-TNF alpha drug (ENBREL)-5 years; clotting abnormality |
![]() |
| Bookmarks |
| Thread Tools | |
| Display Modes | |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Stem Cell Transplant | Beckygal | Non-Hodgkin's Lymphoma | 10 | 01-28-2007 01:15 PM |
| Stem Cell Transplant - Tell Me All! | kburgee8304 | Hodgkin's Lymphoma | 4 | 10-05-2005 07:43 PM |
| stem cell transplant | janhmelb | Non-Hodgkin's Lymphoma | 7 | 06-26-2005 04:50 PM |
| Stem Cell Transplant for Mantle Cell | shirls | Non-Hodgkin's Lymphoma | 4 | 08-10-2002 11:48 PM |
| stem cell transplant | michelle | Non-Hodgkin's Lymphoma | 7 | 03-23-2002 06:43 AM |