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  #1  
Old 11-28-2006, 12:03 PM
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gracie82159 gracie82159 is offline
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Default What's In A Name? (AKA aliases....)

Okay, I'll admit it...I stole this from the Hodgkins side of the board. But it looked like so much fun and I have wondered before about so many of your screen names...so here goes...please share what your screen name means!

I'll go first...when I first started "talking" to people on the 'net, I often visited a chat room called "Parenting and Education" on a site that I don't even think exists any more called Freeyellow. (I am a parent and was on the school board, and now work for a school district, hence my interest in those subjects.) I talked quite often with someone from Canada. At the end of our conversations, he started saying, "Say good night, Gracie", a la George Burns and Gracie Allen. "Gracie" stuck, and I use it on MSN messenger too. The numbers are my date of birth (yeah I'm old... )...so that's it. Not terribly interesting, but apparently unique enough that I didn't have any trouble registering here.

How about your stories? I've always thought some of the names on here are really interesting!

Kathy
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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  #2  
Old 11-28-2006, 12:16 PM
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Default Re: What's In A Name? (AKA aliases....)

In 2004 while I was going through RCHOP in the winter, I took an old '92 mountain bike that had an 8-speed drivetrain, stripped it and converted it to a singlespeed bike, which reminded me of the bikes I used to ride when I was a kid in the late 60s/early 70s. It signified freedom to me. A new means to explore the areas beyond my neighborhood in NY. So, this was a bike with one speed. I've since built several other 1speed bikes and even ride them in 100-mile century rides. You can't have more fun on a bike.
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Cliff
Dx: Diffuse large B-cell
Dx: Mediastinal Grey-zone B-cell
Dx: Classical Hodgkins
2004 Stage 2: CHOP-R, rads, age 39
2005 Relapse, Stage 4: RICE, High-dose Cytoxan/Rituxan/KGEL vaccine trial
2006 Relapse, Stage 4: Fludarabine/High-dose Cytoxan/TBI/Allo-BMT (mini-haplo)
2007 NED, cGvHD flare, prednisone, tacro
2008 NED, cGvHD flare, prednisone
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  #3  
Old 11-28-2006, 12:18 PM
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Default Re: What's In A Name? (AKA aliases....)

I like that thread too Kathy. I thought about stealing their idea for a thread telling our personal cancer stories as well.

The origin of my name is a little embarassing. I always have a hard time coming up with login names so a friend of mine suggested a name generator. I didn't even think of my own name.... When I saw pine soul it struck a chord with me. I grew up in the north woods and I do think it left me with a bit of a "pine soul"
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7/06 Diagnosed PMLBC IVB @ age 42
CHOPR 4x
PET uptake
Oct 06 switched to DA-EPOCH
Finished 6th cycle total
PET uptake
12/06 Finished 8 cycles
1/07 PET uptake
Feb 07 Lung Biospsy Pos
SCT May 07 Bexxar Trial
NED Aug 07
NED Nov 07
NED AUG 08
NED Nov 08
The Welcome Wagon for newly diagnosed
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  #4  
Old 11-28-2006, 12:21 PM
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lurkyloo lurkyloo is offline
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Default Re: What's In A Name? (AKA aliases....)

Quite a while back I was on a message board where I had to register, even though I didn't plan to post much, if at all. I was thinking I was a looky-loo - then I remembered people who read but don't post are called lurkers so I came up with lurkyloo. I have had an e-mail address with "lurkyloo" in it for years that I used on websites where I didn't want my real name visable, and when I needed to change to a less "personalized" user name here, I decided on lurkyloo!
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It's me - Jen! (minus 4539 posts!) Husband Mario dx 9/99 DLBC NHL Stage 4 CHOPX6 remission 1/00 Relapsed 10/01 - Follicular Mixed Grade 2 *10 good years with Rituxan alone!* 1/10 - on to Treandra!
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  #5  
Old 11-28-2006, 12:46 PM
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Debbiefix Debbiefix is offline
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Default Re: What's In A Name? (AKA aliases....)

My real name is Debbie FitzPatrick. For 14 years I worked as an aide in a 2nd grade classroom. The kids always called me Mrs. Fixpatrick. So when I started on AOL, my screenname was Fixpatrick. Everyone thought I was a guy, so I changed it to Debbiefix. And that's the story..lol
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June 2005 NHL low grade, stage 4 SLL/CLL
August 2005 Rituxan x4
November 2005 Partial response
Dec 2005-Jan 2006 Rituxan x8
June 2006 Remission
On to Rituxan maintenance every 6 months for 2 years
November 2006 as close to NED as possible
May 2007 - even better scans!
scans are every 6 months
November 2007 No Evidence of Disease!!!!
February 2008 Rituxan maintenance complete
May 2008 Completely normal scans
November 2008 PET scan - NED
graduated to annual scans!
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  #6  
Old 11-28-2006, 12:56 PM
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lsutiger78 lsutiger78 is offline
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Default Re: What's In A Name? (AKA aliases....)

Mine's simple. I'm a 2 time graduate of LSU!! Geaux Tigers!
(so is shane)

78 being the year I was born!
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-ami, Husband Shane (30) - misdiagnosed 5/2/06 age 28 with stage 1, FNHL.
5/16/07 - Wrong diagnosis! Biopsy confirms lymphoblastic lymphoma..starting hypercvad-r
9/20/07 - NED!!! Finally!! 3 more rounds to go!
11/09/07 - Finished last round of hypercvad! DONE!
01/18/08 - PET Scan still NED!!! YAY!
04/29/08 - It's back as ALL.
08/01/08 - Passed away at MD Anderson
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  #7  
Old 11-28-2006, 01:14 PM
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gracie82159 gracie82159 is offline
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Default Re: What's In A Name? (AKA aliases....)

Sheesh Amy, did ya have to add that last bit? That is the year after I graduated from high school!!! GAK!
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dx 1/06 fNHL gr 2 stg IIA; 4/06 PET shows more than CT, stg III/IV; 6/06-Clinical trial Rituxan; 8/06, 11/06, 6/07, 12/07-NED; 6/08-one node at 1.8cm; 7/08-4 more rounds of R; 10/08, 7/09-remission continues! Dance with life and leave a brilliant light behind...
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  #8  
Old 11-28-2006, 01:20 PM
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Debbiefix Debbiefix is offline
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Default Re: What's In A Name? (AKA aliases....)

Oh Kathy, I was married for 6 years by the time 1978 rolled around..lol
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June 2005 NHL low grade, stage 4 SLL/CLL
August 2005 Rituxan x4
November 2005 Partial response
Dec 2005-Jan 2006 Rituxan x8
June 2006 Remission
On to Rituxan maintenance every 6 months for 2 years
November 2006 as close to NED as possible
May 2007 - even better scans!
scans are every 6 months
November 2007 No Evidence of Disease!!!!
February 2008 Rituxan maintenance complete
May 2008 Completely normal scans
November 2008 PET scan - NED
graduated to annual scans!
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  #9  
Old 11-28-2006, 02:45 PM
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Default Re: What's In A Name? (AKA aliases....)

This is cute. I think you all should guess where my name is from... HAHAHA! M for Michael and kat, for well, me.
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~Kat

Mom to Aidan ~4 1/2 and Karina ~3
Husband, Michael, diagnoised 8/4/06 with T cell rich B cell lymphoma Stage IV
7/22/06: Major surgery biopsy and kidney stints
9/7/06-12/22/06: 6 rounds of R/CHOP
1/30/07: AUTO SCT on clinical study
2/5/07: Happy New Birthday!
2/20/07: Released from hospital. We made it!
2/26/07: Happy Real Birthday~29!
4/3/07: REMISSION!!
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  #10  
Old 11-28-2006, 03:32 PM
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Default Re: What's In A Name? (AKA aliases....)

my name ws a beutiful gift. i cherish it. tressur it. truth.
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