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#1
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I think I might write a book on "What NOT to say to a cancer patient" such as:
1. Oh no! a friend of mine died of that! 2. THAT doctor...I know a patient of his who died like a dog 3. Oh, I hope it is not THAT, my sister died waiting for a transplant 4. You're getting chemo! It is chemo that kills you, not the cancer I am sure the insensitivity is unintentional but please!! Any one else had stupid stuff said to them?
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Alison Age 62 Dx July 2006 Grade 1 Follicular Lymphoma, Stage 1V. Three cycles of Cytoxan, Fludarabine and Rituxan, one cycle of Fludarabine and Rituxan and two cycles of Rituxan alone. Post treatment CT scan in February showed no sign of enlarged lymph nodes in mesentery. CT in August showed no change...normal scan! Yeah! |
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#2
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oh ali, we COOD rite a book. we'v talkd bbout this bfor. rud peeple.
i tend to simply point out how obnoxus thay are being, and wach ther fase trn a tthowsand shades of red, but hay, thats an aquarius. heers a funny one tho....i was told 'hay, yor hed looks jus like a litebulb!' affttr the inittl prreddy, i sstarttd losng watte and tthen evn the preddy didnt help and indeed i DID look like a litebulb. but why ttell me that? DUH! i NO i do, jacka$$. this was an adulttt not a kid.and i, too, ggot 'oh, my coussn died of THAT bbut she putt up a grate ffite'...gee thanks ffor tthe grate wrrds. dork. heer's the winnr, in MY case.........one of my FORMR oncs acttuly sed to me that it wwasntt 'cosst efecttiv' to go the gamma kniffe routte whn tom asskd about it and wwantd to take me up tto cleveland. hugs tto ya, ali. let it all roll off yor bbak. or lett me kik tther butts. ![]() heers tto hope sara
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Against the force of laughter nothing can stand.-- Mark Twain The Welcome WagonCincy Heers To Hope LTN TEAM |
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#3
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OHMYGOD Ali! I hope no one said those to you! I'm just amazed at people sometimes!
Maurice
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Maurice, Age 49 (yep, another year older!) Sep 2008 - CT Clear- NO MORE CTs!! 04/18/05 - Completed 4 cycles of R/CHOP with no major side-effects thanks to Neulasta! Feb 2005 - Negative Bone Marrow Biopsy & Negative PET/CT. 12/15/04 - Partial Pancreatic Duodenoctomy (Whipple) for pancreatic tumor - fNHL, Grade IIE (Lg B Cell), evolving to diffuse pattern. Also involving two proximal lymph nodes. |
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#4
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I heard I know how you feel my dog (I love pets but they aren't spouses) was just dx with cancer too...
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[img] ttp://tickers.TickerFactory.com/ezt/d/4;10715;1/st/20040929/e/NED/k/21ad/event.png[/img] Dawn - Wife of Stu, 44 years old when dx April 2004 with DLBCL Stage 4b, 8 chop treatments, remission as of Sept. 29th, 2004 www.TickerFactory.com |
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#5
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I'm sure we can all think of awful things that were said to us and you'd be able to write a book. Unfortunately those are not the people who would buy the book!
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Wendy DX 11-28-05 fnhl W&W |
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#6
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I always love the "that's the BEST cancer to get." As if any cancer is good to get.
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Diagnosed 9/03 with Stage 4, b-cell marginal zone NHL; 63 percent bone marrow involvement W&W for 1.5 years CVP+R, 8 cycles 1/05, began two years of Rituxan maintenance 9/07, 17 rad treatments for 'stubborn' growing node 10/07, surgery for removal of unrelated, benign brain tumor |
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#7
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Quote:
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~Kat Mom to Aidan ~4 1/2 and Karina ~3 Husband, Michael, diagnoised 8/4/06 with T cell rich B cell lymphoma Stage IV 7/22/06: Major surgery biopsy and kidney stints 9/7/06-12/22/06: 6 rounds of R/CHOP 1/30/07: AUTO SCT on clinical study 2/5/07: Happy New Birthday! 2/20/07: Released from hospital. We made it! 2/26/07: Happy Real Birthday~29! 4/3/07: REMISSION!! |
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#8
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someone said to me...."so, how long do you have if this chemo doesnt work." .....
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Anjou, follicular large cell,Stage 2, dx 9/99, CHOPx3, 3600 rad, rituxan x4, should have been dx'd 7/97, --get second opinions on biopsies!!! Check www.lymphomation.org |
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#9
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Hi Ali: I ran into that myself. It is one thing when other people say that but when your family says I think they made a mistake that is another form of denying what has happened.
It just amazes me how people can be so cruel. Well what can we do. Just keep on going. hilde
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Hildegard |
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#10
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Most people just don't understand and are ignorant of the possible impact of what they are saying. I try to remember that and laugh it off. You know the line from Mary Poppins: "A spoonful of sugar makes the mecicine go down," well just try to remember that and find the humor.....somewhere. Overall, I think people are well-intentioned. Hugs, PacaMom
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Diagnosed with fNHL 9/99, no conventional treatment to date. Have used various supplements and natural survival strategies since Day 1 of diagnosis. Watch and Learn... |
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